Tuesday 13 October 2009

GRRRRR

Lots of people have been so kind in asking how R is and what is happening, that I thought it wouldn't hurt to post an update. IS this very arrogant? I have a sneaking suspicion it might be, but it also seems such an easy way of keeping people informed. And also I'm in a bit of a selfish strop, and a bit of blogging, along with a glass of red, might readdress the balance.

So. We waited all day yesterday for these results that the consultant had promised, having waited all bloody weekend with it lurking stinkishly round the backs of our minds. Did he phone? Of course not. So we tried to phone him.

And oh, how the NHS can shine.

"'Oo?" said the brash lady on the switchboard "We 'aven't got one of 'em." I said they must have because he had been dealing with R, in hospital, just last week. The lady, who was no doubt miffed at having an enquirer phone the enquiries part of the hospital and thereby interrupt her reading of Grazia, with an enquiry, finally found that there was a Dr W, and put me through. To cardiology.

"But it's not cardiology I want" I said to the kinder lady I spoke to there "I'm sure it should be neuroscience, or some such area". The Kind Cardiology Lady suggested I ring the ward direct.

So I did. Again, they were very kind, and remembered R from last week, and expressed surprise to hear that results had been promised, but not delivered. "But Dr W is not here for a while", she said. A while? Well, a week, they said. Perhaps. So when he said he would definitely ring and tell us on Monday? Hmmm, was the response. But they did have a doctor with an idea to help. Why, she said, don't you try to get yourself re-admitted via A&E this evening, then you can be waiting on a ward for when the consultant does his rounds tomorrow? I said that A&E was surely for emergency only? She ummed and erred. I suggested it to R, who looked quietly-daggers at the phone, said a very calm No, and that was that.

Now, I don't know whether it has been the recent, pretty much constant submersion into the Mega Mindy theme tune, but at some points in your life you just get so sick of being Polite, and English, and Not-Wanting-to-Make-a-Fuss. And you want to kick some NHS-butt. So. I emailed. I left messages with secretaries. I phoned back and left more. Meanwhile R felt rubbish.

Finally, today, our consultant phoned me back. He didn't know why things had happened as they had, he said. He said, consultant-ishly, that he hoped there wouldn't be undue cause for concern, and that he personally felt there might not. So why had other people felt so differently? If the risk was so very low, why drag him in late in the evening and pump drain-cleaner into his arm? Why tell us he might be there for a few weeks, and immediate treatment was vital? The consultant said that this was very interesting. And that perhaps we could wait till Friday. Ok, I said, then why have we been treated with such superficial urgency, if we could, after all, wait till Friday? Again, apparently, it was an "interesting" point. And he couldn't speak for what other people had done. Of course.

R is calmer and more pragmatic than me. R has shrugged and gone back to the sofa, saying there's not much else we can do. He also goes along with the lines of No-News-Is-Good-News. And where I would usually believe this, I am no longer sure, with the NHS, that this is true. It seems to me that No-News is rather more to do with Someone-Hasn't-Passed-On-A-Message. Or that Someone-Has-Gone-Home-And-Taken-The-Info-With-Them. And while I agree with him that we should just wait, there is a small spoilt brat inside me who wants to scream and stamp a princessy foot.

And I DO know that there are thousands of people in so very much worse situations, both here and around the world, and I should be grateful for all we have, I really do. I KNOW we are lucky to live in a country where we have any access to healthcare, and I know that the NHS is packed full of hard-working, well-trained expertise doing a jolly good job. But I can't help it, tonight. I want to know now. And I want to ask questions. And I would really, really like some answers, very soon. I am so so tired of feeling like I'm falling. And I hate seeing R like this.

Is it really so impossible?

Gosh, I really AM a selfish cow tonight.

5 comments:

  1. You so aren't! Please please think about getting a referral to a teaching hospital. There are cases all the time that mainstream hospitals do not know the answer to and its always 'interesting' for them to experience one. R is not a lab rat, and he needs to be treated by someone who knows how to deal with it, properly and quickly, so he can get back on with living his life. Im fairly sure St Mary's Paddington is pretty good and worth a shot and there's probably a website to find out who is good. Im thinking about you both X

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  2. Ben je helemaal gek geworden?? Natuurlijk ben je niet egoïstisch en verwend! Ik zou ook heel hard als een prinses gaan stampen als je tegen zo veel dichte deuren aan loopt. Hoe frustrerend kan het worden? En je kunt wel alles gaan relativeren omdat er NOG VEEL ERGERE DINGEN in de wereld gebeuren, maar op dit moment is dit voor jullie gewoon het ALLERBELANGRIJKST. Dus ik zou gewoon doorgaan met vragen vragen vragen. Want je hebt toch recht op antwoord. Hallo het gaat wel om jullie leven!

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  3. Absolutely not! You just care and want him to be well again. We are all behind you, we just do not ask as often as you may just feel that you have had enough of talking about it. However, we are all thinking of you and support you. Chin up K, best wishes to R and keep strong,
    Milly
    xxx

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  4. Thanks for posting an update. I have been wondering and thinking of you both.

    I'll join you: GRRRRRRRRRRR

    Nothing wrong with kicking a little butt sometimes. If that doesn't work, try crying to the bastards. Maybe that will get them to do something. I'm not advocating this as a regular manipulative occurence, but for special NHS-induced situations. Bastards!

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  5. You lot are very kind. Firstly to put yourselves through the strain of reading my rambling blog but also to send such super comments!
    You are all absolutely right of course - sometimes, you have to stand up for yourself. I just wonder when and why I stopped doing this.
    Things are looking up. Must write another post but SO tired now! x

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